An essential part of the professional patient lifestyle is to have a well organized health folder. Everything else may be out of whack if you're going through a bad pain phase, but at least you know where your last test results are.
Journals, pharmaceutical information, results, letters from the hospital... I try to keep it all in one place and file it so it's easy to find (of course I prefer to colour code it - just because it makes me happy). In my health folder I also file research I've done on my condition, inspiration and interesting information about new treatments.
I am not so organized that I file everything straight away, but once or twice a month I'll empty the case on my desk and get great pleasure from sorting everything in neat piles... It makes me feel slightly nerdy... Oh, the joys of order!